SCDAA 46th Annual National Convention has ended

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SCDAA 46th Annual National Convention

Celebrating Diversity Within the Sickle Cell Community: Commitment, Innovation, Practice

12:00pm EDT

Novartis Advisory Board Pratt/Calvert HRSA Grant Team Meeting Pisces

4:00pm EDT

Prolong Focus Group President

5:30pm EDT

Executive Leadership Council Meeting/Member Training Piesces

7:00pm EDT

Get Connected Kiosk Broadcast Lounge B Registration Constellation Foyer

8:00pm EDT

SCDAA Board Meeting Chesapeake A

7:00am EDT

General Evaluation Form Nursing Evaluation Form Social Worker Evaluation Form

7:30am EDT

Breakfast Harborview Speed Networking Harborview Super Power Hour Harborview

8:00am EDT

SCDAA Business Session Constellation A Prolong Focus Group Pratt/Calvert

9:15am EDT

Opening Ceremony: Celebrating Diversity Within the Sickle Cell Community. Meet the New National Child Ambassador Constellation A

10:00am EDT

Break Constellation EF

10:30am EDT

Treatment Demonstration Update Constellation A Plenary Session I Community Based Organization Highlights Constellation AB

11:00am EDT

Newborn Screening Grant Update Constellation A

11:30am EDT

PCORI Grant Update Constellation A

12:00pm EDT

Executive Leadership Luncheon President Hemolytic Anemia in Sickle Cell Disease: What is it and Why Does it Matter? Constellation AB

1:15pm EDT

Developing My Healthcare Passport Frederick/Columbia Telementoring Constellation D Using Implementation Science to Develop and Evaluate Psychosocial Interventions in SCD Baltimore/ Annapolis Virtual Reality as an Adjunct Pain Management Therapy Constellation C Community Health Worker Training Camden/Lombard Concurrent Workshop Sickle Cell Basics Constellation AB

1:45pm EDT

Hydroxyurea and Transfusions Frederick/Columbia Chronic Pain Constellation D Examining Spiritual Well Being During Health Care Transition for Adolescents and Emerging Adults with Sickle Cell Disease Baltimore/ Annapolis

1:55pm EDT

The Opioid Crisis and Nursing Ramifications Constellation C

2:15pm EDT

Effective Transition Frederick/Columbia Transplantation Updates Constellation D Peer Mentoring vs. Structured Education to Improve Transition to Adult Care in SCD Baltimore/ Annapolis

2:35pm EDT

The Opioid Crisis- Non opioid Pain Management Treatment Options Constellation C

2:45pm EDT

Chronic Organ Damage Frederick/Columbia Managing Sickle Cell Disease in Older Adults Constellation D Community Health Workers vs. A Mobile App to Improve Transition to Adult Care in SCD Baltimore/ Annapolis

3:15pm EDT

Break Constellation EF

3:30pm EDT

PLENARY II Clinical Trial Update Constellation A

4:00pm EDT

PCORI Camden/Lombard

6:00pm EDT

Poster Session Atrium

7:00pm EDT

Chairman's Reception and Generation S " Rock the Block Event " Piesces

7:00am EDT

General Evaluation Form Nursing Evaluation Form Social Worker Evaluation Form

7:30am EDT

Breakfast/ Poster Viewing Harborview Super Power Hour Harborview

8:30am EDT

PLENARY SESSION III Real Life Experience with Transplantation: Patient and Family Perspective Constellation A Real Life Experiece wiith Transplantation: Patient and Family Perspective Constellation A

9:30am EDT

Charles F. Whitten, MD Memorial Lecture Constellation A

10:00am EDT

Diversity Panel LaTonya Kittles, Pfizer Constellation A

11:30am EDT

Self-Advocacy 101 for Individuals with SCD Baltimore/ Annapolis Community Health Worker Training President Healing the Healer Provider Session Constellation C Prolong Focus Group Pratt/Calvert Patient Family Session I Pratt/Calvert

12:00pm EDT

Finding your Voice between the Patient and Caregiver Baltimore/ Annapolis American Red Cross (Luncheon) Frederick/Columbia Prolong Focus Group Luncheon Camden/Lombard

12:15pm EDT

Lunch on Your Own IASCHAA Constellation D

1:30pm EDT

Lonzie Lee Jones Patient Advocacy Symposium Constellation A

3:00pm EDT

Break Constellation EF

3:15pm EDT

Effect Of Long Term Treatment With Sc411 On Sickle Cell Crisis Rate In Children With Sickle Cell Disease Constellation C Patient and Caregiver Perspectives on Areas of Burden In Sickle Cell Disease Management Baltimore/ Annapolis Discovering And Breaking Down Barriers: Improving Compliance with Appointments in the Pediatric Sickle Cell Clinic Constellation D Strategies And Next Steps For Improving Sickle Cell Disease Care: Highlights From The Sickle Cell Disease Treatment Demonstration Program (SCDTDP) Frederick/Columbia Striving in the Workforce with Sickle Cell Pratt/Calvert Simultaneous Session I Baltimore/ Annapolis

3:30pm EDT

Compassionate-Use Voxelotor (GBT440) For Up To 2 Years In Patients With Severe Sickle Cell Disease And Life-Threatening Comorbidities Constellation C Finding SCD Patients In Michigan - A Case Study Baltimore/ Annapolis The Opioid Epidemic And CDC Guidelines: A Case Of An Unfortunate Consequences Paved By Good Intentions Constellation D

3:45pm EDT

Crizanlizumab 5.0 Mg/Kg Increased the Time to First On-Treatment Sickel Cell Pain Crisis (SCPC) and the Likelihood of not Experiencing SCPC While on Treatment: Subgroup Analyses of the Phase 2 Sustain Study Constellation C The Communication, Awareness, Relationship and Empowerment (C.A.R.E.) Model: An Effective Tool for Engaging Urban Communities in Community-Based Participatory Research Baltimore/ Annapolis Availability of Information on Blood and Marrow Transplantation (BMT) Coverage Benefits for Patients with Sickle Cell Disease (SCD) Enrolled in Medicaid Constellation D

4:00pm EDT

Parent and Youth Barriers to Hydroxyurea Adherence in Adolescents with Sickle Cell Disease Constellation C Technology Access And Preferences For Smartphone Application Content Among Adults With Sickle Cell Disease And Their Caregivers Baltimore/ Annapolis A Training Approach for Newborn Screening Personnel in Nigeria Constellation D

4:15pm EDT

Sickle Cell Patients with Leg Ulcers have a Pro-Thrombotic Profile Constellation C Digital Engagement In The Sickle Cell Community Baltimore/ Annapolis The Importance of Social Work In Complex SCD Care: A Model For Clinical Intervention Constellation D

4:30pm EDT

Crizanlizumab Treatment is Not Asoociated with the Development of Proteinuria and Hematuria in Patients with Sickle Cell Disease: Sustain Study Safety Analysis Constellation C Novel Ways To Recruit New Health Care Professionals Into The Sickle Cell Arena Baltimore/ Annapolis The Forgotten Vital Sign: Use of A Distress Thermometer with Children, Adolescents and Young Adults Diagnosed with Sickle Cell Disease Constellation D

4:45pm EDT

Genome Editing to Fix the Sickle Cell Disease Causing Variant in Sickle Cell Patient Hematopoietic Stem Cells Constellation C Geography Seems To Be A Factor That Determines The Outcome Of Transition For Children With Sickle Cell Disease Into Adult Programs Baltimore/ Annapolis

5:00pm EDT

Correction of the Sickle Mutation in Hematopoietic Stem/Progenitor Cells with CRISPR/Cas9: The Berkeley/UCSF/UCLA Sickle Cell Clinical Translation Project Constellation C

5:15pm EDT

The Clinical-Stage SGC Stimulator Olinciguat Prevents Increase Of Plasma Biomarkers Of Intravascular Inflammation And Suppresses Leukocyte-Endothelial Interactions In Tnfa-Treated Mice Constellation C

6:00pm EDT

Red Carpet Reception and Photos Constellation Foyer

7:00pm EDT

UNITY SOIREE Constellation AB

7:00am EDT

General Evaluation Form Nursing Evaluation Form Social Worker Evaluation Form

7:30am EDT

Breakfast Harborview Speed Networking Harborview Super Power Hour Harborview Exhibits Open Constellation EF Get Connected Kiosk Broadcast Lounge B

8:00am EDT

SCDAA Board Meeting Chesapeake A

8:30am EDT

Pravastatin-Mediated Modulation Of Sickle Red Cell Adhesion Using Mouse Endothelial Cells In Vitro Constellation B Rate Of Vaso-Occlusive Crisis Episodes Among Sickle Cell Disease Patients In The US Medicaid Population Baltimore/Annapolis Improving Provider Readiness For Young Adult Transitions: The (8) Behavioral Changes Providers Can Make To Improve Transition Outcomes Constellation CD Mental Health and Sickle Cell Disease Frederick/Columbia Registration Constellation Foyer

8:45am EDT

The Strong-SCD Trial: A Phase 2 Study Ofolinciguat (IW-1701), A Stimulator Of Soluble Guanylate Cyclase (sGC) Inpatients With Sickle Cell Disease (SCD) Constellation B Pilot Group For Middle Schoolers With SCD Constellation CD Psychosocial Impact, Health Beliefs And Stigma Of Leg Ulcers In Adults With Sickle Cell Disease In A National Sickle Cell Center Baltimore/ Annapolis

9:00am EDT

SC411 For Treatment Of Children With Sickle Cell Disease: A Phase 2, Randomized, Double-Blind, Dose-Finding, Placebo-Controlled, Parallel-Group, Multi-Center Study (Scot Trial) Constellation B The Beats Program: Sickle Cell Health Education Through Music Therapy Constellation CD

9:15am EDT

Clinical Development Of Rivipansel (GMI-1070) For The Treatment Of Acute Vaso-Occlusive Crisis In Sickle Cell Disease Constellation B

9:30am EDT

A Systematic Literature Review Of Patient-Reported Outcome Instruments Used In Sickle Cell Disease Constellation B Break Constellation EF

10:00am EDT

Gene Therapy for Sickle Cell Disease: Fact or Fiction? Constellation CD PLENARY SESSION IV Constellation A

10:30am EDT

Clarice D. Reid, MD Lecture – Global Strategies for Sickle Cell Disease Constellation CD

11:00am EDT

National Partner Updates Constellation CD

12:30pm EDT

Lunch On Your Own Patient Empowerment Luncheon Chesapeake AB NIH SCDIC Session – Overview of NIH SCDIC Constellation CD Reproductive Health in Adolescent and Adult Men with Sickle Cell Disease Youth and Young adult Forum Pratt/Calvert

1:00pm EDT

Emmaus Focus Group Baltimore/Annapolis Hydroxyurea and Pregnancy Frederick/Columbia Exhibitor Breakdown Constellation EF

2:00pm EDT

Closing Assembly & Adjournment Constellation CD