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Celebrating Diversity Within the Sickle Cell Community: Commitment, Innovation, Practice
Friday, October 12 • 3:45pm - 4:00pm
The Communication, Awareness, Relationship and Empowerment (C.A.R.E.) Model: An Effective Tool for Engaging Urban Communities in Community-Based Participatory Research

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Abstract 

Authors:
Ms. Marlene Peters-Lawrence- National Heart, Lung, and Blood Institute/National Institutes of Health, Ms. Joniqua Ceasar- National Heart, Lung, and Blood Institute/National Institutes of Health, Dr. Tiffany Powell-Wiley- National Heart, Lung, and Blood Institute/National Institutes of Health, Mrs. Valerie Mitchell- National Heart, Lung, and Blood Institute/National Institutes of Health

Objective:
Little is known about recruitment methods for racial/ethnic minority populations from resource-limited areas for community-based health and needs assessments, particularly assessments that incorporate mobile health (mHealth) technology for characterizing physical activity and dietary intake. We examined whether the Communication, Awareness, Relationships and Empowerment (C.A.R.E.) model could reduce challenges recruiting and retaining participants from faith-based organizations in predominantly African American Washington, D.C. communities for a community-based assessment. Employing C.A.R.E. model elements, our diverse research team developed partnerships with churches, health organizations, academic institutions and governmental agencies. Through these partnerships, we cultivated a visible presence at community events, provided cardiovascular health education and remained accessible throughout the research process. Additionally, these relationships led to the creation of a community advisory board (CAB), which influenced the study's design, implementation, and dissemination.
Methods:
Each part of the C.A.R.E. model involved specific strategies that were implemented throughout various stages of the study.
Results:
Over thirteen months, 159 individuals were recruited for the study, 99 completed the initial assessment, and 81 used mHealth technology to self-monitor physical activity over 30 days.
Conclusion:
The culturally and historically sensitive C.A.R.E. model strategically engaged CAB members and study participants. The C.A.R.E. model was essential for the success in recruitment and retention of an at-risk, African American population and may be an effective model for researchers hoping to engage racial/ethnic minority populations living in urban communities. The C.A.R.E research recruitment model was implemented in a randomized clinical trial for sickle cell disease. (figure attached publication pending).

Speakers
avatar for Marlene Peters-Lawrence, BSN, RN, RRT

Marlene Peters-Lawrence, BSN, RN, RRT

Clinical Trial Specialist, National Heart Lung and Blood Institute
Marlene Peters -Lawrence is a Clinical Trials Specialist in the Division of Blood Diseases and Resources, Blood (DBDR), Epidemiology and Clinical Therapeutics Branch at the National Heart Lung and Blood Institute (NHLBI). Ms. Peters-Lawrence has been with NIH for over fifteen years... Read More →


Friday October 12, 2018 3:45pm - 4:00pm
Baltimore/ Annapolis

Attendees (23)