Celebrating Diversity Within the Sickle Cell Community: Commitment, Innovation, Practice
avatar for Lewis L. Hsu, MD, Ph.D

Lewis L. Hsu, MD, Ph.D

University of Illinois Hospital
Professor Pediatric Hem-Onc
Chicago, Illinois
Lewis Hsu is a pediatric hematologist dedicated to finding more cures for sickle cell disease, and improving treatment and education until cures can be found. He has experience with clinical and translational research in sickle cell disease, including clinical research on pain assessment and management of children hospitalized with sickle cell pain. He has 20 years of experience in leadership of some of the largest sickle cell programs in the country, caring for children with complex sickle cell disease, conducting clinical research, and working with sickle cell community groups.  He has published over 60 peer-reviewed papers, mentored numerous physicians and graduate students, and contributed to 4 sickle cell websites devoted to patient education. He participates in NIH-funded clinical trials networks and other multidisciplinary research. Close cooperation with Health Disparities initiatives in legislative advocacy, community health fairs, and fund-raising for sickle cell disease have deepened his appreciation for the multiple concerns of families living with sickle cell.  His recent initiatives focus on improving patient outcomes and healthcare costs through healthcare delivery improvement in collaboration with primary care and emergency department, and improving the adolescent-young adult transition in sickle cell. Working closely with adult hematology, he is building a comprehensive program for pediatric-adult Comprehensive Sickle Cell Center across the lifespan, develop clinical guidelines, and develop regional consortia. He is now gaining experience with PCORI in the CAPriCORN project to build a data sharing infrastructure across Chicago, as co-chair of the working group on sickle cell and nurturing community participation in research.