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SCDAA 46th Annual National Convention
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Celebrating Diversity Within the Sickle Cell Community: Commitment, Innovation, Practice
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Basic Science and Translational Research
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Clinical Research 2
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Wednesday
, October 10
Broadcast Lounge B
7:00pm •
Get Connected Kiosk
Chesapeake A
8:00pm •
SCDAA Board Meeting
Constellation Foyer
7:00pm •
Registration
Piesces
5:30pm •
Executive Leadership Council Meeting/Member Training
Pisces
12:00pm •
HRSA Grant Team Meeting
Pratt/Calvert
12:00pm •
Novartis Advisory Board
President
4:00pm •
Prolong Focus Group
Thursday
, October 11
Atrium
6:00pm •
Poster Session
Baltimore/ Annapolis
1:15pm •
Using Implementation Science to Develop and Evaluate Psychosocial Interventions in SCD
1:45pm •
Examining Spiritual Well Being During Health Care Transition for Adolescents and Emerging Adults with Sickle Cell Disease
2:15pm •
Peer Mentoring vs. Structured Education to Improve Transition to Adult Care in SCD
2:45pm •
Community Health Workers vs. A Mobile App to Improve Transition to Adult Care in SCD
Camden/Lombard
1:15pm •
Community Health Worker Training
4:00pm •
PCORI
Constellation A
8:00am •
SCDAA Business Session
9:15am •
Opening Ceremony: Celebrating Diversity Within the Sickle Cell Community. Meet the New National Child Ambassador
10:30am •
Treatment Demonstration Update
11:00am •
Newborn Screening Grant Update
11:30am •
PCORI Grant Update
3:30pm •
PLENARY II Clinical Trial Update
Constellation AB
10:30am •
Plenary Session I Community Based Organization Highlights
12:00pm •
Hemolytic Anemia in Sickle Cell Disease: What is it and Why Does it Matter?
1:15pm •
Sickle Cell Basics
Constellation C
1:15pm •
Virtual Reality as an Adjunct Pain Management Therapy
1:55pm •
The Opioid Crisis and Nursing Ramifications
2:35pm •
The Opioid Crisis- Non opioid Pain Management Treatment Options
Constellation D
1:15pm •
Telementoring
1:45pm •
Chronic Pain
2:15pm •
Transplantation Updates
2:45pm •
Managing Sickle Cell Disease in Older Adults
Constellation EF
10:00am •
Break
3:15pm •
Break
Frederick/Columbia
1:15pm •
Developing My Healthcare Passport
1:45pm •
Hydroxyurea and Transfusions
2:15pm •
Effective Transition
2:45pm •
Chronic Organ Damage
Harborview
7:30am •
Super Power Hour
7:30am •
Breakfast
7:30am •
Speed Networking
Piesces
7:00pm •
Chairman's Reception and Generation S " Rock the Block Event "
Pratt/Calvert
8:00am •
Prolong Focus Group
President
12:00pm •
Executive Leadership Luncheon
Friday
, October 12
Baltimore/ Annapolis
11:30am •
Self-Advocacy 101 for Individuals with SCD
12:00pm •
Finding your Voice between the Patient and Caregiver
3:15pm •
Simultaneous Session I
3:15pm •
Patient and Caregiver Perspectives on Areas of Burden In Sickle Cell Disease Management
3:30pm •
Finding SCD Patients In Michigan - A Case Study
3:45pm •
The Communication, Awareness, Relationship and Empowerment (C.A.R.E.) Model: An Effective Tool for Engaging Urban Communities in Community-Based Participatory Research
4:00pm •
Technology Access And Preferences For Smartphone Application Content Among Adults With Sickle Cell Disease And Their Caregivers
4:15pm •
Digital Engagement In The Sickle Cell Community
4:30pm •
Novel Ways To Recruit New Health Care Professionals Into The Sickle Cell Arena
4:45pm •
Geography Seems To Be A Factor That Determines The Outcome Of Transition For Children With Sickle Cell Disease Into Adult Programs
Camden/Lombard
12:00pm •
Prolong Focus Group Luncheon
Constellation A
8:30am •
PLENARY SESSION III Real Life Experience with Transplantation: Patient and Family Perspective
8:30am •
Real Life Experiece wiith Transplantation: Patient and Family Perspective
9:30am •
Charles F. Whitten, MD Memorial Lecture
10:00am •
Diversity Panel LaTonya Kittles, Pfizer
1:30pm •
Lonzie Lee Jones Patient Advocacy Symposium
Constellation AB
7:00pm •
UNITY SOIREE
Constellation C
11:30am •
Healing the Healer Provider Session
3:15pm •
Effect Of Long Term Treatment With Sc411 On Sickle Cell Crisis Rate In Children With Sickle Cell Disease
3:30pm •
Compassionate-Use Voxelotor (GBT440) For Up To 2 Years In Patients With Severe Sickle Cell Disease And Life-Threatening Comorbidities
3:45pm •
Crizanlizumab 5.0 Mg/Kg Increased the Time to First On-Treatment Sickel Cell Pain Crisis (SCPC) and the Likelihood of not Experiencing SCPC While on Treatment: Subgroup Analyses of the Phase 2 Sustain Study
4:00pm •
Parent and Youth Barriers to Hydroxyurea Adherence in Adolescents with Sickle Cell Disease
4:15pm •
Sickle Cell Patients with Leg Ulcers have a Pro-Thrombotic Profile
4:30pm •
Crizanlizumab Treatment is Not Asoociated with the Development of Proteinuria and Hematuria in Patients with Sickle Cell Disease: Sustain Study Safety Analysis
4:45pm •
Genome Editing to Fix the Sickle Cell Disease Causing Variant in Sickle Cell Patient Hematopoietic Stem Cells
5:00pm •
Correction of the Sickle Mutation in Hematopoietic Stem/Progenitor Cells with CRISPR/Cas9: The Berkeley/UCSF/UCLA Sickle Cell Clinical Translation Project
5:15pm •
The Clinical-Stage SGC Stimulator Olinciguat Prevents Increase Of Plasma Biomarkers Of Intravascular Inflammation And Suppresses Leukocyte-Endothelial Interactions In Tnfa-Treated Mice
Constellation D
12:15pm •
IASCHAA
3:15pm •
Discovering And Breaking Down Barriers: Improving Compliance with Appointments in the Pediatric Sickle Cell Clinic
3:30pm •
The Opioid Epidemic And CDC Guidelines: A Case Of An Unfortunate Consequences Paved By Good Intentions
3:45pm •
Availability of Information on Blood and Marrow Transplantation (BMT) Coverage Benefits for Patients with Sickle Cell Disease (SCD) Enrolled in Medicaid
4:00pm •
A Training Approach for Newborn Screening Personnel in Nigeria
4:15pm •
The Importance of Social Work In Complex SCD Care: A Model For Clinical Intervention
4:30pm •
The Forgotten Vital Sign: Use of A Distress Thermometer with Children, Adolescents and Young Adults Diagnosed with Sickle Cell Disease
Constellation EF
3:00pm •
Break
Constellation Foyer
6:00pm •
Red Carpet Reception and Photos
Frederick/Columbia
12:00pm •
American Red Cross (Luncheon)
3:15pm •
Strategies And Next Steps For Improving Sickle Cell Disease Care: Highlights From The Sickle Cell Disease Treatment Demonstration Program (SCDTDP)
Harborview
7:30am •
Super Power Hour
7:30am •
Breakfast/ Poster Viewing
Pratt/Calvert
11:30am •
Patient Family Session I
11:30am •
Prolong Focus Group
3:15pm •
Striving in the Workforce with Sickle Cell
President
11:30am •
Community Health Worker Training
Saturday
, October 13
Baltimore/ Annapolis
8:45am •
Psychosocial Impact, Health Beliefs And Stigma Of Leg Ulcers In Adults With Sickle Cell Disease In A National Sickle Cell Center
Baltimore/Annapolis
8:30am •
Rate Of Vaso-Occlusive Crisis Episodes Among Sickle Cell Disease Patients In The US Medicaid Population
1:00pm •
Emmaus Focus Group
Broadcast Lounge B
7:30am •
Get Connected Kiosk
Chesapeake A
8:00am •
SCDAA Board Meeting
Chesapeake AB
12:30pm •
Patient Empowerment Luncheon
Constellation A
10:00am •
PLENARY SESSION IV
Constellation B
8:30am •
Pravastatin-Mediated Modulation Of Sickle Red Cell Adhesion Using Mouse Endothelial Cells In Vitro
8:45am •
The Strong-SCD Trial: A Phase 2 Study Ofolinciguat (IW-1701), A Stimulator Of Soluble Guanylate Cyclase (sGC) Inpatients With Sickle Cell Disease (SCD)
9:00am •
SC411 For Treatment Of Children With Sickle Cell Disease: A Phase 2, Randomized, Double-Blind, Dose-Finding, Placebo-Controlled, Parallel-Group, Multi-Center Study (Scot Trial)
9:15am •
Clinical Development Of Rivipansel (GMI-1070) For The Treatment Of Acute Vaso-Occlusive Crisis In Sickle Cell Disease
9:30am •
A Systematic Literature Review Of Patient-Reported Outcome Instruments Used In Sickle Cell Disease
Constellation CD
8:30am •
Improving Provider Readiness For Young Adult Transitions: The (8) Behavioral Changes Providers Can Make To Improve Transition Outcomes
8:45am •
Pilot Group For Middle Schoolers With SCD
9:00am •
The Beats Program: Sickle Cell Health Education Through Music Therapy
10:00am •
Gene Therapy for Sickle Cell Disease: Fact or Fiction?
10:30am •
Clarice D. Reid, MD Lecture – Global Strategies for Sickle Cell Disease
11:00am •
National Partner Updates
12:30pm •
NIH SCDIC Session – Overview of NIH SCDIC
2:00pm •
Closing Assembly & Adjournment
Constellation EF
7:30am •
Exhibits Open
9:30am •
Break
1:00pm •
Exhibitor Breakdown
Constellation Foyer
8:30am •
Registration
Frederick/Columbia
8:30am •
Mental Health and Sickle Cell Disease
1:00pm •
Hydroxyurea and Pregnancy
Harborview
7:30am •
Breakfast
7:30am •
Speed Networking
7:30am •
Super Power Hour
Pratt/Calvert
12:30pm •
Youth and Young adult Forum
Filter By Date
SCDAA 46th Annual National Convention
Oct 10
-
13, 2018
Wednesday
, October 10
Thursday
, October 11
Friday
, October 12
Saturday
, October 13
Filter By Venue
Hyatt Regency Baltimore Inner Harbor 300 Light Street, Baltimore, Maryland, USA,
Sort schedule by Venue
Atrium
Baltimore/ Annapolis
Baltimore/Annapolis
Broadcast Lounge B
Camden/Lombard
Chesapeake A
Chesapeake AB
Constellation A
Constellation AB
Constellation B
Constellation C
Constellation CD
Constellation D
Constellation EF
Constellation Foyer
Frederick/Columbia
Harborview
Piesces
Pisces
Pratt/Calvert
President
Filter By Type
Basic Science and Translational Research
Clinical
Clinical Research 2
Community Based Organizational Highlights
All
Clinical Trial Update
Community Based Research
Patient & Family Track
Physician/Provider track
Policy & Psychosocial Research
Psychosocial Track
Public Health
Popular
Recently Active Attendees
Latasha Lee
Rev. Jimmie Williams
Katresse Credle
AC
Azizi Coleman
Dominique Goodson
Rae
Stuart Siedman
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